Fundación Respiralia contra la Fibrosis Quística

1. Information and advice service: It includes advice and, if necessary, accompaniment  when making steps of negotiation related with CF before the Public Administration; delivery of proper bibliography depending on the age of the person with CF; answering any of their doubts with the help of the corresponding experts; and welcoming them to our charity.

2. Respiratory physical therapy service: The respiratory physical therapy chases to maintain the airways free of secretions, something fundamental in the people with CF to avoid or to reduce the pulmonary infections. Due to its importance, our charity does a special effort in this service and provides several weekly sessions of chest therapy to all the interested ones. It includes different techniques, though we apply more the autogenic drainage, technique of preference for CF since the Consensus of Lyon in 2002. We also give importance to the formation for people with CF in order that they can apply it correctly at home.

3. “Physio Complement” service: This service complements that of respiratory physical therapy and includes technologies to improve the breathing (manual internal and external therapy, lymphatic drainage and easing of the diaphragm) and the digestion (easing of Oddi’s sphincter and massage of the large intestine).

4. Psychosocial attention service: With this service, the charity offers to the persons with CF and their relatives psychological help for the maintenance of a good mental condition before the difficult situations provoked by the disease.

5. Service of accompaniment: Our charity offers volunteers to gather the user and to take him to the different services when this one does not have anybody who could accompany him. Likewise, the charity offers to the families a volunteer to relieve the relative in case of hospitalization of the person with CF, in order that he can rest or realize other domestic, familiar or personal tasks.

6. Formation service: Workshops and theoretical – practical courses to train and to advise the children and young people with cystic fibrosis and their relatives on different aspects of the disease: general hygiene and cleanliness of devices, autogenic drainage techniques, rules of living with other people with fibrosis, nutritional advices, etc.