Fundación Respiralia contra la Fibrosis Quística

1. Welcome, advice and information program: It includes welcome to people interested, advice and, if necessary, accompaniment  when making steps of negotiation related with CF before the Public Administration; delivery of proper bibliography depending on the age of the person with CF; answering any of their doubts with the help of the corresponding experts; and welcoming them to our charity

2. Individualized physical training program: It is intended to improve the pulmonary capacity and the muscular tone of the thoracic cavity. Other aims of this program are: to increase the capacity before the effort, to improve the psychomotor activity, to incorporate the physical exercise in the daily routine and to transform it into a synonymous of amusement in the family. It combines chest therapy (autogenic drainage) and physio complement (manual internal and external therapy, lymphatic drainage and easing of the diaphragm) and the digestion (easing of Oddi’s sphincter and massage of the large intestine).

3. Formation program: Workshops and theoretical – practical courses to train and to advise the children and young people with cystic fibrosis and their relatives on different aspects of the disease: general hygiene and cleanliness of devices, autogenic drainage techniques, rules of living with other people with fibrosis, nutritional advices, etc. This program is for people with cystic fibrosis and relatives living in the Balearic Islands.

4. “Productive holidays in Mallorca” program: Included at the formation program, the 2 apartments of our new center are at disposal of those families with children with CF who want to spend some “productive” holiday in Majorca, sharing leisure with some learning and developing sessions of autogenic drainage and physical training. This program is directed to people with cystic fibrosis and their relatives not living in the Balearic Islands.