Disponible en / Available in: Español
The Respiralia Foundation organized for the first time Respiralia 2010 “12 hours of swimming against Cystic Fibrosis,” as a presentation of the XI Swimming Tour around Formentera.
At the Agora Portals school swimming pool, 150 swimmers participated in the event of solidarity that had three objectives: to raise awareness of cystic fibrosis, presenting the XI Swimming Tour around Formentera and raising funds to finance the services offered to children and young people with this disease. All of them could test the comfort of the new anti jellyfish suit imported from Australia by the Respiralia Foundation. From May it will be available. Prices: 39,00 € children and 49,00 € adults.
Among the 150 swimmers emphasizes the participation of a baby of 11 months, a swimmer of 75 years that swam 10 kilometers, and the presence of authorities like the Minister for Health and Consumer Affairs, the Presidential Delegate for Sport of the Balearic Government, the Director General of Sports and the Director of Social Services of the Consell de Mallorca, two lieutenants of Mayor of Calvia and the Coordinator of Social Services City Council.
One of the most special visit was the football team Atletico Baleares of the 3rd Division, which made a generous donation.
The total mileage on this first issue amounted to 137.5 and raising about € 3,000.00 approx. This will be our starting point to address in future editions.
Here you have the video, filmed, edited and narrated by Víctor Mayol.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
Currently, more than 2000 mutations are known in the gene that is defective in people with Cystic Fibrosis, although only about 150 mutations are described as causing the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease (1 in 40 in the Balearic Islands).
In the Balearic Islands there are 76 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.