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The Balearia Foundation and the Respiralia Foundation sign a collaboration agreement to promote their Corporate Social Responsability
On Friday the 24th of June, Mr. Juan Vicente Soriano, the Balearia Delegate for the Balearic Area, visited the Respiralia Foundation headquarters to learn about the services offered to the children with cystic fibrosis. They also signed the collaboration agreement between both foundations which will be used to promote the sustainable development, the economical growth and the social cohesion. This signature corroborates the willingness of Balearia to collaborate in achieving the goals of the Respiralia Foundation, which has been demonstrating since the first editions of the Swimming Tour around Formentera against Cystic Fibrosis.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
The treatment for Cystic Fibrosis includes antibiotherapy, a healthy and hypercaloric nutrition and respiratory physiotherapy combined with endurance exercises.
You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link (Spanish version) or see how Dani tells us what this disease is for him in this vídeo (Spanish version).
Currently, more than 2000 mutations are known in the gene that is defective in people with Cystic Fibrosis, although only about 150 mutations are described as causing the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease (1 in 40 in the Balearic Islands).
In the Balearic Islands there are 76 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.
