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The Respiralia Group is formed by the Respiralia Foundation and the Cystic Fibrosis Balearic Association. In this section you will find all the information you need about us.
Transparency
Based on our commitment to transparency, we provide all the information in a clear manner, with emphasis on disclosing all the subsidies, grants, donations and contributions we receive from public administrations, private companies, public and private foundations and society in general.
Quality managment
Thanks to the help of the Spanish Federation of Cystic Fibrosis, we have improved our management by applying processes and procedures that improve our performance. The Cystic Fibrosis Balearic Association obtained in 2021 the 2-star certificate for Excellence in management and social commitment from the Grupo Develop Foundation and with the endorsement of Bureau Veritas.
Although the Respiralia Foundation is not yet certified, it uses the same processes and procedures as the Association, so quality management is guaranteed.
Code of Ethics
We want to hear your complaints and suggestions, so we have set up an anonymous form so that you can help us improve.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link or see how Dani tells us what this disease is for him in this vídeo.
Currently, more than 2,000 mutations are known to cause the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease.
In the Balearic Islands there are 73 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.
