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In this section, you can consult the Purpose, Mission, Vision, Values of the Respiralia Group, formed by the Respiralia Foundation and the Cystic Fibrosis Balearic Association.
Respiralia Foundation
Purpose
To facilitate the social integration of people with Cystic Fibrosis by improving their state of health.
Mission
To work to improve the quality of life of people with Cystic Fibrosis, to spread the knowledge of the disease and to promote environmental protection to improve the quality of air breathed by people with Cystic Fibrosis.
Vission
To become a national and international reference for people with Cystic Fibrosis and for entities related to the disease.
Values
- Innovation and search for excellence in the services offered to people with Cystic Fibrosis.
- Social integration for all people with Cystic Fibrosis.
- Equality of women with Cystic Fibrosis.
- Continuous training of our team of professionals.
- Democratic participation of all stakeholders that make up the Foundation.
- Commitment to resource optimization and environmental sustainability.
- Transparency in management.
Read more here.
Cystic Fibrosis Balearics Association
Mission
To work to improve the quality of life of people with Cystic Fibrosis and to spread the knowledge of the disease.
Vision
To become a national and international reference for people with Cystic Fibrosis and for entities related to the disease.
Values
- Innovation and search for excellence in the services offered to people with Cystic Fibrosis.
- Social integration for all people with Cystic Fibrosis.
- Equality of women with Cystic Fibrosis.
- Continuous training of our team of professionals.
- Democratic participation of all stakeholders that make up the Foundation.
- Commitment to resource optimization and environmental sustainability.
- Transparency in management.
Read more here.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link or see how Dani tells us what this disease is for him in this vídeo.
Currently, more than 2000 mutations are known in the gene that is defective in people with Cystic Fibrosis, although only about 150 mutations are described as causing the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease.
In the Balearic Islands there are 73 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.
