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How is Cystic Fibrosis experienced in adolescence? Erika Fernandez, 11 years old, tells us her opinion about Adolescence and Cystic Fibrosis in this new informative capsule.
Her routines
Erika trains once a week with Joan Huguet, physical educator of the Fundación Respiralia, and twice a week in an athletics club. She gets up before her colleagues to do her treatment before breakfast and fulfills the obligations imposed by the disease.
Adolescence and Cystic Fibrosis
She tells us how she lives with this disease, the treatments she has to undergo and how she deals with this issue in her environment. She tells us that she notices how her friends have other abilities when it comes to performing activities that require physical effort, which she sees as the main difference.
Her environment
Erika tells us that she only tells her closest and most trusted friends that she has Cystic Fibrosis. She does not like to be anyone’s joke and, therefore, only her most loyal friends share “her secret”, people who she knows will support her at all times.
Treatment compliance
At her age, Erika already knows that doing the treatment allows her to be able to do many other things and to have the disease under control. But she also admits that it forces her to stop doing activities with her friends, who, on the other hand, wait for her and support her while she undergoes the treatments.
Being equal in the difference
As we talked about in the previous capsule with our psychologist Isabel Badillo, we are committed to transmitting the message of “Being equal in the difference”, because all people have different capabilities and that should be considered as something positive. CF entails a responsibility to carry out treatments and lead a healthy lifestyle, and although sometimes it is difficult to do so, as Erika says, you have to make an effort and think that what you do now will have repercussions in the future, for better or worse. This is important to keep in mind at all stages of life, although adolescence is a key phase.
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