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At the II Congress of the Spanish Federation of Cystic Fibrosis celebrated on June 19, the Respiralia Foundation and the Cystic Fibrosis Association of the Balearics received the Cystic Fibrosis 2010 Prize for the best associative initiative with the “Individualized Physical Training Program for Children with Cystic Fibrosis” which is developed at the Foundation’s gym since 2008. At the professional section, the Prize was for the physitherapist creator of the technique “Autogeni Drainage”, Professor Jean Chevaillier, for its great career in the service of children with Cystic Fibrosis.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
The treatment for Cystic Fibrosis includes antibiotherapy, a healthy and hypercaloric nutrition and respiratory physiotherapy combined with endurance exercises.
You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link (Spanish version) or see how Dani tells us what this disease is for him in this vídeo (Spanish version).
Currently, more than 2000 mutations are known in the gene that is defective in people with Cystic Fibrosis, although only about 150 mutations are described as causing the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease (1 in 40 in the Balearic Islands).
In the Balearic Islands there are 76 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.
