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On Wednesday, April 25, 2018, we will commemorate the National Cystic Fibrosis Day with the #pompasporlafibrosisquistica campaign. You can also participate. You dare?
The Respiralia Foundation and the Cystic Fibrosis Association of the Balearics are going to carry out their particular action at the La Salle School in Palma. A talk with high school students and an outdoor activity making soap bubbles will be the means to publicize Cystic Fibrosis to the whole society with the help of the media. In addition, we will demand the availability of doctors to the latest-generation drugs that can stop the disease in some of our children.
You can also join the #pompasporlafibrosisquistica campaign by uploading pictures and videos to your social networks with your children making bubbles and sending a message of solidarity to children and young people with Cystic Fibrosis and asking the authorities to approve the medicine “Orkambi” with the hashtag #OrkambiYA.
