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Joan Huguet, physical educator of the Respiralia Foundation, talks about childhood with CF and exercise.
Physical education in children with Cystic Fibrosis, as our physical educator Joan Huguet tells us, is based on play to increase adherence and make physical exercise part of the routine of children with this disease.
In this case, the measurement of blood oxygen saturation is not so important, since at these ages, as a general rule, they do not present desaturations when performing physical exertion. The more they grow, the more desaturation they will suffer, so, as much integrated they have the exercise in their life, the less it will affect them.
Workout routines
Circuits are carried out an the gym of the Respiralia Foundation, in which coordination and resistance are worked by having to perform them several times. In this informative capsule, Sara works with spades, cones, stairs and step, performing 3 laps of this circuit. She then switches to the puzzle game with numbers and, finally, to the game of spades with hoops.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
The treatment for Cystic Fibrosis includes antibiotherapy, a healthy and hypercaloric nutrition and respiratory physiotherapy combined with endurance exercises.
You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link (Spanish version) or see how Dani tells us what this disease is for him in this vídeo (Spanish version).
Currently, more than 2000 mutations are known in the gene that is defective in people with Cystic Fibrosis, although only about 150 mutations are described as causing the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease (1 in 40 in the Balearic Islands).
In the Balearic Islands there are 76 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.
