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The Respiralia Group, formed by the Cystic Fibrosis Balearic Association and the Respiralia Foundation, works to improve the quality of life of people with Cystic Fibrosis and to spread the knowledge of this disease to society. Join the Respiralia movement and collaborate in their projects in the way that best suits your possibilities.
Collaborate with the project you are most interested in
You can choose between making a regular or one-off contribution, supporting the Comprehensive Care project for people with Cystic Fibrosis (including the welcome, orientation and follow-up program, the Education equals Health in Cystic Fibrosis program, the osteopathy program, and the effort reeducation program) or supporting our Awareness project events (Swimming Tour around Formentera against Cystic Fibrosis, Solidarity KM against Cystic Fibrosis, etc.).v
DONATIONS
Your contribution is very important to us to improve the quality of life of children and young people with Cystic Fibrosis and disseminate this serious and incurable disease.
BECOME A MEMBER
If you want to make a contribution to the Cystic Fibrosis Balearic Association, you can do it with a minimum of € 15.00 per quarter.
ARE YOU AN ENTREPRENEUR?
Participate in the project “Educate is Health in Cystic Fibrosis” and give visibility to the CSR of your company with corporate volunteering.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link or see how Dani tells us what this disease is for him in this vídeo.
Currently, more than 2,000 mutations are known to cause the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease.
In the Balearic Islands there are 73 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.
