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The Cystic Fibrosis Balearic Association (CFBA) will be delighted that you are part of this project. If you want to make a contribution, become a member of the CFBA with only a minimum of 15,00 euros per quarter.
How to apply?
If you are interested, just fill out this form and send it to us:
What rights and obligations will I have?
The rights and obligations of members are set forth in the Association’s Bylaws.
How many types of associate members are there?
On the one hand, we have the active associate members, who are those people of legal age with Cystic Fibrosis or their direct relatives living with them or the ones living with children with Cystic Fibrosis.
How much is paid?
The minimum membership fee is 15.00 € per quarter, being able to increase this amount voluntarily if desired. It is established that, for each family unit, at least one of the associated persons must pay this minimum fee, being voluntary the payment for the rest of the members of that family unit.
Do I have to do anything else besides submitting the form?
Once we receive the form you send us, we will send you an email with a welcome letter from the person who holds the presidency at that time, our code of ethics and the Internal Regulations. Once you receive it, you must send us the signed code of ethics as a sign of your commitment to our values.
How can I help?
In addition to your contribution, which is very important, you can participate by contributing ideas to improve our services and activities. Also, if you want, you can present your candidacy for one of the positions on the Board of Directors.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
The treatment for Cystic Fibrosis includes antibiotherapy, a healthy and hypercaloric nutrition and respiratory physiotherapy combined with endurance exercises.
You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link (Spanish version) or see how Dani tells us what this disease is for him in this vídeo (Spanish version).
Currently, more than 2000 mutations are known in the gene that is defective in people with Cystic Fibrosis, although only about 150 mutations are described as causing the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease (1 in 40 in the Balearic Islands).
In the Balearic Islands there are 76 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.
