Disponible en / Available in: Español
The Respiralia Group is formed by the Cystic Fibrosis Balearic Association and the Respiralia Foundation. Our projects are mainly based on the companies collaboration, donations and public subsidies. Any help is welcome.
You can collaborate in several ways
Strengthen the CSR of your company offering your staff the possibility to help us with the storytelling of the tale “Respiralio and the Great Blue Bear” to children between 6 and 9 years old, to give talks about the “respiratory system and Cystic Fibrosis” to children between 10 and 14 years of age or “genetics and Cystic Fibrosis” to young people between 15 and 17 years old in different educational centers. It is very simple, fun and, above all, with positive results in the short term.
Activity in the company itself
You can also organize an event with your employees and, if possible, with their children, and we will show them what Cystic Fibrosis is in your facilities or in ours. In this way we also achieve the goal of making the disease known to more families.
If you have an idea of how you could collaborate, tell us and we adapt.
Our communication team will spread the news of your collaboration.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
The treatment for Cystic Fibrosis includes antibiotherapy, a healthy and hypercaloric nutrition and respiratory physiotherapy combined with endurance exercises.
Currently, more than 2000 mutations are known in the gene that is defective in people with Cystic Fibrosis, although only about 150 mutations are described as causing the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease (1 in 40 in the Balearic Islands).
In the Balearic Islands there are 76 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.