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Education equals Health in Cystic Fibrosis
It is a project that aims to enable people with Cystic Fibrosis to manage the treatment of their disease in the most autonomous way possible, so that they are not overly dependent on the team of professionals and thus can travel or do activities with the confidence of knowing how to carry out the sessions with the highest possible productivity.
It is divided into several programs:
Training sessions on Autogenic Drainage, inhaled therapy and hygiene measures.
Autogenous Drainage is the technique of choice in Cystic Fibrosis since the Lion Consensus in 2002. It is a complicated technique, both for the physiotherapist and for the user.
We use a continuous online evaluation form that allows us to monitor the evolution of each user. In this way, any member of the team can know in which phase of the training they are in, which aspects of the treatment they need to reinforce, the medical treatment they are receiving and all the details that will make a more personalized attention.
Cost per session: €30.00
Physical exercise should be a pillar, in combination with respiratory physiotherapy, in the treatment of Cystic Fibrosis. But this exercise should not be treated as a physical training like those done in a gym, but as a way to re-educate the body of the user so that he/she can perform daily activities that require physical effort in a more bearable way.
In this sense, aerobic, mobility, strength-resistance and maximum strength exercises are performed in a controlled way by pulse oximeter to avoid oxygen desaturation in the blood. Each session will be adapted to the physical condition of the user on that particular day, as this disease affects in a very variable way depending on the infections that may have at any given time.
Cost per session: €20.00