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Yesterday, Wednesday 18 October, a conference on organic disability was organised at Cocemfe as a turning point on the road to the rights of people with disabilities.
Difficulties of people with organic diseases
It was highlighted the need for visibility, prevention and the creation of coordinated social and health spaces that respond to all needs.
The presentations highlighted the constant struggle for inclusion and flexibility to be the starting point for all resources, as the majority of people with organic disabilities, such as those caused by Cystic Fibrosis, are people with a high need for specific, continuous and multidisciplinary treatment.
Lack of health and social services
COCEMFE denounces that 75% of people with physical and organic disabilities do not receive the health and social services they need on a frequent and continuous basis, due to waiting lists, lack of specialists, the need for coordination, among others.
This situation is even more accentuated in the case of women with disabilities (80%). This information is reflected in the “Study on the conditioning factors of socio-sanitary coordination for the personal autonomy of people with physical and organic disabilities in Spain” (Spanish version).
It’s not all bad news
In spite of the bad data reflected above, there was hopeful data and that, in terms of social protection, there has been an improvement in the level of rights for people with organic disabilities.:
- Royal Decree on retirement (Spanish version)
- Extended Child Benefit (Spanish version)
- Update of the orthopaedic catalogue (Spanish version)
Disability assessment scale
The rest of the communities detected resistance in the assessment commission of the new scale. It is true that a period of adaptation is required for it to be truly useful, but the results should already be visible.
In relation to this point, we invite you to let us know if you have had any problems with the new valuations, so that we can find out about the problems in our community.
Interdisciplinary coordination
The conference emphasised the importance of interdisciplinary coordination at the social and health care level in order to obtain a good assessment and, above all, the need for detailed medical reports from specialists.
#TogetheragainstCF
