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New informative capsule about Covid and Cystic Fibrosis with Dr. Borja Osona.
In this new informative capsule, Dr. Borja Osona, pediatrician specialized in Cystic Fibrosis at the Son Espases Hospital, and Carlos Pons, director of the Respiralia Foundation, discuss the effects of Covid-19 on the Cystic Fibrosis collective.
Dr. Osona tells us how children and young people with Cystic Fibrosis have lived the pandemic, with data on the incidence of the virus in the group, and the fears that have appeared.
The vaccine
The talk deals with the subject of the coronavirus vaccine. Whether or not it is advisable in Cystic Fibrosis and in transplant recipients are logical questions that families ask us every day. Dr. Osona gives us his opinion on the subject.
You can read the letter of the Cystic Fibrosis Spanish Society about the vaccine.
Telemedicine
Video calls with patients have become commonplace in the wake of the pandemic. The fear of at-risk groups to go to hospitals or even to leave home may be a key factor in the continued use of this tool. Is it here to stay? It seems so, but when is it indicated to use it?
Symkevi for children between 6 and 12 years old
After the recent approval of Symkevi by the Spanish Agency of Medicines and Patents for minors between 6 and 12 years of age, the obvious question is… when will it be applied?
Tienes más información sobre esta noticia en este enlace.
Positive message
Dr. Osona did not want to miss the opportunity to send a positive message to the Cystic Fibrosis collective.
On the one hand, the measures already applied by this group are the best for the prevention of infections, so there is no need to be overwhelmed and they should be applied more than ever.
On the other hand, the approval of Symkevi for children between 6 and 12 years of age is great news that should give hope to families.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link or see how Dani tells us what this disease is for him in this vídeo.
Currently, more than 2,000 mutations are known to cause the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease.
In the Balearic Islands there are 73 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.
