The Cystic Fibrosis Association of the Balearics tries to offer a comprehensive care service to children and young people with Cystic Fibrosis, which is complemented with what is dictated by the specialist doctor.
Thus, this service includes the following activities:
- Welcome, orientation and follow-up: When a child is diagnosed, it is essential that the family be protected at all times in order to overcome the initial shock. Having the correct information for each stage of the disease and not getting internet data, often not right or not applicable to all newly diagnosed, is the best tool to begin to assimilate the changes. Afterwards, it will be necessary to guide families in the different processes of evolution of the disease and to follow up on each case in order to offer them the best advice in each case.
- Education equals Health in Cystic Fibrosis: It consists of training in the technique of Autogenic Drainage, inhaled therapy protocols and hygienic recommendations. It is essential to convert children and young people with Cystic Fibrosis in people who manage their treatment autonomously.
- Psicosocial attention: The development of the disease influences the mood of the child or young person with Cystic Fibrosis and their families. The Association provides this psychosocial attention with professionals who attend each case in a specific way.
In addition, to meet our objectives, we organize social, cultural and sports events to publicize the symptoms and treatment of society. According to the statistics, there are still cases to be diagnosed, which means that if the society knows the disease it can help us to discover those people who have Cystic Fibrosis and still do not know it and, therefore, do not receive the adequate treatment.