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Having Cystic Fibrosis implies, depending on the mutations, many daily obligations. As the current regulations stand, being born with Cystic Fibrosis does not imply receiving the disability certificate, but it is necessary to demonstrate before a committee everything that makes the person concerned worthy of this certificate. But, really, what does it mean to have a disability certificate? We talk about it with Neus, mother of a 2 and a half year old boy who has Cystic Fibrosis, in this new informative capsule about Disability in Cystic Fibrosis.
Why apply for a disability certificate?
In her case, due to the mutations she has and other supervening causes, they decided to request this certificate to be able to pay more attention to the treatment of her son and, in addition, to be able to access the rights that this certificate recognize.
Abilities vs Disability
We could think that, being an “invisible” disease to the eyes, we do not have to have this certificate. We must leave behind the negative thought that came to our minds when talking about disability as a person’s condition that prevented him/her from doing things. The person holding a disability certificate simply has other capabilities that will allow him/her to do some things or others, but it should not be considered as something pejorative in any case.
On the contrary, it should be accepted as a document that is kept in the drawer and used when a person needs it, and not as a sticker on the forehead that stigmatizes the person who carries it.
Rights granted by the disability certificate
Among the rights granted by this disability certificate, provided that certain requirements are met such as having 33% disability or more, in the Balearic Islands we have:
- Awarding of points in the application for a school place.
- Scholarships for children from 3 years of age for pedagogical reeducation and speech therapy.
- Free enrollment and reserved places at the University of the Balearic Islands (UIB).
- Free use of the Campus d’Esports of the UIB and special prices in other sports centers.
- Exemption at the UNED of the payment for academic services in the first enrollment.
- Registration in the Employment Services as a job seeker in the specific employment exchange for people with disabilities.
- Renta Activa de Inserción (RAI), according to income and time in unemployment.
- Minimum Income for Insertion (RMI), meeting certain requirements.
- Job orientation and job search for people with disabilities.
- Training for employment in Public Administrations
- Aid for business start-ups
- Family allowance for dependent children, subject to certain conditions.
- Large family certificate, subject to certain conditions
- Individual financial aid for people with disabilities
- Non-contributory pension, subject to conditions
- Early retirement age, depending on the degree of disability.
- Discounts on telephone and water bills, depending on family income.
- Discounts on the price of public transportation (EMT, train, subway, TIB and Renfe), under certain conditions.
- Exemption from circulation and registration taxes.
- VAT tax reduction of 4% on the purchase of a vehicle.
- Award of points when applying for the rental or purchase of subsidized housing.
- Inheritance tax discount for inheritance transfers, according to the degree of disability.
- Deductions on the amount to be paid in the IRPF, according to the degree of disability.
- Discounts on the price of tickets to theaters and museums.
- Discounts in courier shipments by MRW.
- Reduction of working hours between 50% and 99% for a dependent child with a disability without salary reduction.
Where to apply
The application in the Balearic Islands can be made either in person, at the Early Intervention Assessment Service (C/ Joan Maragall, 17A de Palma), or by internet, at this link.
What documentation do you need to be prepared?
The following documentation must be prepared:
1) Clinical documentation. It is requested at the Administration Department of the Son Espases Hospital, in the case of the Balearic Islands. This clinical history includes the results of all the diagnostic tests (they come on a CD) and the medical reports made up to the date of issue of the document. It is important to make a backup copy in case we want to hand it in later (the Hospital will only be able to give copies of the tests performed after the date of the medical history).
2) Family record book and ID of the parents.
Once the documentation is presented, in about two or three months an interview will be held, in which the details of the treatments that are carried out will be told.
From the Respiralia Foundation and Cystic Fibrosis Balearic Association we claim that the recognition of a 33% disability is granted from the moment of diagnosis, since it is a disease considered as serious and degenerative that can manifest itself at a more or less early age, but requires a lot of care from day one.