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Today, several members of Ramon Lull Lodge attended the Respiralia Foundation in San Agustin to present cheques for money raised during the year by members of the lodge, Masons from other countries and collections made from the general public. Present were David Hammond (Worshipful Master of the Lodge), Ian Scambler (Treasurer), David Strugnell (Senior member of the lodge), Vincent Miller (Lodge member) and Stephen Baggaley (Secretary).
David Hammond presented a cheque for 1000 euros on behalf of the members of Ramon Llull Lodge in recognition of the efforts made by Darren Dunlop who ran the length of the island in September to raise awareness of cystic fibrosis.
Ian Scambler presented another cheque for 1000 euros which was made up of 835 euros raised by Allan Kinloch of Plantation Lodge in Glasgow, Scotland, who had heard of our charity work and visited Masonic lodges in Scotland collecting donations. Several members of the Menorca Lodge visited Mallorca in October and added 165 euros to the Scottish donation to make it up to a round 1000 euros.
Through the summer collection boxes were placed in several bars in the Magalluf area and the Lodge would like to thank Robinson Crusoe’s, the Boat Yard, Foxes, the Tartan Arms, Sinky´s and the Winning Post for helping to raise a further 242.50 euros.
This money will be used to develop the individualized physical training program for children with Cystic Fibrosis of the Respiralia Foundation. This program, directed by Mr. Mike Mayans, is achieving excellent results regarding the pulmonary function and the quality of life of this children.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
The treatment for Cystic Fibrosis includes antibiotherapy, a healthy and hypercaloric nutrition and respiratory physiotherapy combined with endurance exercises.
You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link (Spanish version) or see how Dani tells us what this disease is for him in this vídeo (Spanish version).
Currently, more than 2000 mutations are known in the gene that is defective in people with Cystic Fibrosis, although only about 150 mutations are described as causing the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease (1 in 40 in the Balearic Islands).
In the Balearic Islands there are 76 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.
