Informative capsule on Endurance and CF, with Joan Llobera, physical educator of the Respiralia Foundation.
Endurance and CF, pillar of the treatment
The endurance program should be one of the pillars of the treatment of this disease. It is not a training, as the founding partner of “Físic, espai de salut integral” and physical educator of the Respiralia Foundation Joan Llobera tells us, but to teach how the body of a person with Cystic Fibrosis reacts to the practice of physical exercise, paying special attention to the drops in blood oxygen saturation.
Blood oxygen desaturation
Knowing how to recognize the symptoms when blood oxygen desaturation occurs will be key to avoid possible problems of the heart and other organs. Once the initial phase has been overcome, we can gradually begin to demand more effort from the body without lowering blood oxygen saturation.
Award for the best associative initiative in 2010
The Respiralia Foundation initiated this project, in which people with Cystic Fibrosis are considered “athletes with Cystic Fibrosis”, in 2009, receiving the award for the best associative initiative in the treatment of Cystic Fibrosis in 2010 by the Spanish Federation of Cystic Fibrosis.
Physical exercise and respiratory physiotherapy
The results are being very positive, especially thanks to the combination of exercise with respiratory physiotherapy and medications for Cystic Fibrosis, such as Kaftrio/Trikafta or Symkevi, of which we have already spoken on previous occasions.
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What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
Currently, more than 2,000 mutations are known to cause the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease.
In the Balearic Islands there are 73 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.