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New informative capsule with 4 very special guests. We talk about how we are generating commitment to Cystic Fibrosis in society through our events.
How can we give visibility to Cystic Fibrosis?
One of our main objectives is to give visibility to Cystic Fibrosis. We do this with communication strategies through social networks but, above all, with the events we create.
Our two most famous events are the “Swimming Tour around Formentera against Cystic Fibrosis”, which from this year is now called “Strokes against Cystic Fibrosisin Mallorca“, and our popular race “Solidarity Kilometers against Cystic Fibrosis“.
The associative movement as a driving force
These events are organized in the Balearic Islands, but the rest of the CF entities in the country also hold their own events with the same purpose.
In this capsule we have Xavier Caballero, president of the CF Association of Murcia, and Blanca Ruiz, president of the CF Association of Cantabria and former president of the Spanish CF Federation, as well as Yolanda and Irene, two women with CF from the Balearic Islands.
How do you experience an event with Cystic Fibrosis?
All these people have participated in the first edition of ‘Brazadas’ and we wanted to ask them about the reason that led them to participate in this event:
Blanca Ruiz tells us that the pandemic made her start swimming more in the sea and, given her current good physical condition, she decided to participate in an event she had wanted to go to for years.
Xavier Caballero had never found that moment that allowed him to participate. This year, his health and the availability of his partner have allowed him to live this experience.
Yolanda Molina tells us that the Kaftrio has changed her physical condition in such a way that she felt strong enough to take on a challenge that was going to require a great effort.
For her part, Irene Nevado, already a veteran in the event, missed what she calls “the Respiralia family”. After a year of pandemic and another in which half of that “family” was missing, she could not miss the appointment.
How can we motivate people to participate?
To the question of how we can motivate people to get involved in the associative movement, in our case to fight CF, we get the following reflections:
Blanca Ruiz: “If you want to be part of the result, you have to be part of the process”. This sentence sums up the thoughts of a woman who has been involved in associative work for 23 years.
Xavier Caballero: “It would be necessary to give a turn to the means used by the Associations to motivate people to participate in our events, but it is also true that, being a small collective, we must add up together”.
An example of participation
Yolanda Molina is an example of a participant, not only because she signs up for the events, but also because she mobilizes the people around her to participate and sponsor the effort she makes in that event. In her words, “I am the first beneficiary of the services offered to me, so we have to add up. Events mean those moments that I can share with the people around me and involve them”.
Evolution of consolidated events
Irene Nevado dedicates much of her new life, which began after the second lung transplant, to raise awareness of Cystic Fibrosis and to help people who are on the waiting list for transplantation. In the event “Brazadas contra la Fibrosis Quística en Mallorca”, she explained to all the people present what is Cystic Fibrosis and how a person who has it lives it. Therefore, the registered people returned home with a much greater knowledge about the disease, so they can be great ambassadors of the Respiralia Group when they explain the symptoms to the people around them.