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The program “Education equals Health in Cystic Fibrosis” receives support from the Consell de Mallorca. Thus, IMAS supports training in Cystic Fibrosis carried out in 2019.
The “Education equals Health in Cystic Fibrosis” program is based on the co-responsibility of the user, so he/she has to demonstrate what he/she has learned in the previous training sessions and perform tasks at home.
Training in Cystic Fibrosis
We use an ongoing evaluation form that focuses on improving the productivity of respiratory physical therapy sessions.
In addition, this project includes talks on Cystic Fibrosis and hygiene measures in schools adapted to each age group. Thus, we offer:
- Storytelling for students between 6 and 9 years of age
- A talk on the respiratory system and Cystic Fibrosis to students between 10 and 14 years of age.
- A lecture on genetics and Cystic Fibrosis for high school science students.
Finally, with the activity “PrevAcción: get active in healthy habits”, the Foundation teaches hygiene measures and healthy eating to students between 14 and 17 years of age.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link or see how Dani tells us what this disease is for him in this vídeo.
Currently, more than 2,000 mutations are known to cause the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease.
In the Balearic Islands there are 73 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.
More information about the project in this link.
