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Lantimar sponsors the effort of Joanet, a CF child of almost 6 years old, with 2.000,00 € for his participation in the Kilometers of solidarity against Cystic Fibrosis.
A very supportive sponsorship with a face and eyes
In this new edition of the Kilometers of solidarity against Cystic Fibrosis, we have launched the idea of sponsoring the efforts of people with Cystic Fibrosis who will participate in the race.
In this way, companies and individuals in general can sponsor one of them, leaving behind the classic sponsorship and moving on to a very supportive sponsorship.
Joanet’s effort
Cystic Fibrosis affects the respiratory, digestive, reproductive and sweat glands. This last affectation implies that it is easy to produce a demineralization through sweat, so Joanet and the rest of the people with Cystic Fibrosis have an added difficulty in the race.
Joan, my favorite villain
Joanet’s family is very active in participating in our events. Their team, called “Joan, my favorite villain”, has won the prize for the largest team several years in a row, with more than 100 people.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
The treatment for Cystic Fibrosis includes antibiotherapy, a healthy and hypercaloric nutrition and respiratory physiotherapy combined with endurance exercises.
You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link (Spanish version) or see how Dani tells us what this disease is for him in this vídeo (Spanish version).
Currently, more than 2000 mutations are known in the gene that is defective in people with Cystic Fibrosis, although only about 150 mutations are described as causing the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease (1 in 40 in the Balearic Islands).
In the Balearic Islands there are 76 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.
#TogetheragainstCF
