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On Friday, the 11th of December a solidary day was celebrated against the cystic fibrosis organized by Mood Beach in Portals with Respiralia.
A Christmas street market, a gymkana for children and a charitable degustation of wines served to make people aware of cystic fibrosis and to collect funds for the individualized training program that the Foundation Respiralia is carrying out. The party was completed by a raffle of diverse objects and by an auction of two paintings, all this entertained with a group of Cuban music and Sergey Bruscan´s magic show. Approximately 2.000,00 € were raised thanks to private donations and Bodegas Túnell, Cristalería Calvià, Mallorca Solutions, Lares Decoration, Marriott Vacation Club, Grupotel Valparaíso Palace, TUI Spain, Art Gallery “Maneu”, Bartolomé Ferragut and Bendinat Group.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
The treatment for Cystic Fibrosis includes antibiotherapy, a healthy and hypercaloric nutrition and respiratory physiotherapy combined with endurance exercises.
You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link (Spanish version) or see how Dani tells us what this disease is for him in this vídeo (Spanish version).
Currently, more than 2000 mutations are known in the gene that is defective in people with Cystic Fibrosis, although only about 150 mutations are described as causing the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease (1 in 40 in the Balearic Islands).
In the Balearic Islands there are 76 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.
