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The Palma Town Hall’s facade lit up blue “Respiralia” to commemorate the National Day of Cystic Fibrosis. Some families of the CF Association of the Balearics and the Respiralia Foundation met to demand an agreement between the Ministry of Health and the Vertex Pharmaceuticals laboratory for the medicines Orkambi and Symkevi.
On the other hand, families gathered in the afternoon for the traditional campaign #PompasporlaFibrosisQuística, with the hashtags #OrkambiYA and #SymkeviYA.
The media has supported us with interviews on RNE, IB3 Radio, Onda Cero and IB3TV and news in different print media and digital media.