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ONCE Foundation supports the Respiralia program in Cystic Fibrosis with a subsidy of €13,410.00 for 2020.
It is essential for children and young people with Cystic Fibrosis to train in some techniques. That will allow them to become people who manage the treatment of their disease in the most autonomous way possible.
ONCE Foundation supports the Respiralia program knowing it makes a real change.
The “Education equals Health in Cystic Fibrosis” program is based on the co-responsibility of the user, so he/she has to demonstrate what he/she has learned in previous training sessions and perform tasks at home.
We use a continuous evaluation form which focuses on improving the productivity of the respiratory physiotherapy sessions.
In addition, this project includes talks on Cystic Fibrosis and hygiene measures in educational centers, adapting the talk to the age. So, we offer:
- a storyteller to students between 6 and 9 years of age
- a talk on the respiratory system and Cystic Fibrosis to students between 10 and 14 years of age
- a talk on genetics and Cystic Fibrosis to high school science students.
With the activity “PrevAction: get active in healthy habits”, the Foundation teaches hygiene measures and healthy eating to students between 14 and 17 years of age.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
More than 2000 mutations are known to cause the disease.
Currently, 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands). 1 in 35 people is a carrier of a gene that causes the disease.
We know 73 people diagnosed with Cystic Fibrosis in the Balearic Islands, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover the rest of the cases.
More information about the project in this link.
