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Primary students of Santa Monica school know about CF through a storytelling created by the Respiralia Group.
On Wednesday, October 10, Respiralio went to Santa Monica School to make students of 3rd grade aware about Cystic Fibrosis through the tale “Respiralio and the Big Blue Bear”. The project “Education equals Health in Cystic Fibrosis” includes the spreading of this serious and incurable disease to all society, specially to the youngest. Three objectives are pursued:
- Spreading Cystic Fibrosis: Our pet “Respiralio” tells his adventures while teaching the symptoms and treatment of the disease in a very funny way through the tale “Respiralia and the Big Blue Bear”.
- Preventing the transmission of contagious diseases through the hands: students are taught how to cough in a correct way, changing the habit of coughing to the hand to coughing to the inner part of the elbow, and to wash their hands properly.
- Eradicating the discrimination due to illness at the school rooms: students are taught about how to live with person who have some kind of limitation, be it illness, injury or disability.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
The treatment for Cystic Fibrosis includes antibiotherapy, a healthy and hypercaloric nutrition and respiratory physiotherapy combined with endurance exercises.
You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link (Spanish version) or see how Dani tells us what this disease is for him in this vídeo (Spanish version).
Currently, more than 2000 mutations are known in the gene that is defective in people with Cystic Fibrosis, although only about 150 mutations are described as causing the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease (1 in 40 in the Balearic Islands).
In the Balearic Islands there are 76 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.
