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The Respiralia Foundation and the Cystic Fibrosis Balearic Association return to the classrooms of the Santa Monica School with the story Respiralio and the Big Blue Bear for teaching CF.
Respiralio and the Big Blue Bear
It is a story created by Paz Arizti, member of the Board of Directors of the Cystic Fibrosis Balearic Association, and illustrated by Juan Roig, designer of the company Verbigrafía and volunteer of the Respiralia Group..
It is intended for students between 6 and 9 years of age and tells the adventures of our mascot, Respiralio, as he goes in search of the Big Blue Bear through the forest.
Respiralio, a very curious sea horse
Respiralio, as mascot of the Respiralia Group, is a seahorse that can ride a bike, swim, run and all the things we can imagine. He has CF and teaches us the symptoms of his disease and how is the treatment for Cystic Fibrosis.
In this way, students learn what this disease is and, very importantly, values such as friendship, non-discrimination and healthy habits such as washing their hands or coughing into their elbow.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
The treatment for Cystic Fibrosis includes antibiotherapy, a healthy and hypercaloric nutrition and respiratory physiotherapy combined with endurance exercises.
You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link (Spanish version) or see how Dani tells us what this disease is for him in this vídeo (Spanish version).
Currently, more than 2000 mutations are known in the gene that is defective in people with Cystic Fibrosis, although only about 150 mutations are described as causing the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease (1 in 40 in the Balearic Islands).
In the Balearic Islands there are 76 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.
