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The Respiralia Foundation organized the I Rose of the Sea Fiesta against Cystic Fibrosis with success. Dr. Bernat Togores Solivellas received the Rose of the Sea 2010 award. On September 30, 2010, the Respiralia Foundation organized the I Rose of the Sea Fiesta against Cystic Fibrosis In a wonderful place as it is Mood Beach of Portals. About 120 people, the Minister of Health of the Balearic Government Mr. Vicenç Thomàs and the Minister of Health of the Palma Town Hall Begoña Sánchez among them, were gathered in a very special night where Dr. Bernat Togores Solivellas received the I Rose of the Sea award. Young people with Cystic Fibrosis voted unanimously for his candidature for his dedication, professionalism, sympathy and availability. This sculpture, created by the Majorcan worldwide renowned sculptor Joan Costa, will last in time as it is a unique piece of art which will be passing to the different winners of the award people year after year.
The dinner was entertained by a silent auction with different ítems donated by Son Amar, Oliver Nielson, Home Mallorca, Mallorca Driving, Jonathan Syrett, Camper, Nicholsons, La Source Jewellery France and Porcelanosa, and an live auction, holded by Robert Winsor and Andrew Spence, thanks to items donated by Anna Perpinyà, Prime States, Lares Decoración, Stringfellow’s Club, Sloane Helicopters and Porto Montenegro.
Finally, Natalie Winsor (coming especially from London), Víctor Alejo (guitar) and Andrew Spence (guitar) delighted us with a soul concert.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
The treatment for Cystic Fibrosis includes antibiotherapy, a healthy and hypercaloric nutrition and respiratory physiotherapy combined with endurance exercises.
Currently, more than 2000 mutations are known in the gene that is defective in people with Cystic Fibrosis, although only about 150 mutations are described as causing the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease (1 in 40 in the Balearic Islands).
In the Balearic Islands there are 76 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.