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The Welfare Department of the City Council of Sant Antoni de Portmany supports the treatment of CF with a grant of €3,276.00 to treat people with Cystic Fibrosis in the municipality.
A very supportive municipality
The grant received for the project of comprehensive care for people with Cystic Fibrosis in Sant Antoni de Portmany is just a sample of the solidarity of the entire municipality with our cause.
For many years now, the neighborhood of this town on the island of Ibiza has been helping us to raise funds for the treatment of Cystic Fibrosis.
Solidarity actions carried out
The collection of money in the Concurso Mundial d’Arroç de Matances, in the solidarity paella of the Pagesus del Betis Association or in the race 3 Days Trail Ibiza, with the support of representatives of the consistory, is a proof of the human quality of the people of Sant Antoni de Portmany.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
The treatment for Cystic Fibrosis includes antibiotherapy, a healthy and hypercaloric nutrition and respiratory physiotherapy combined with endurance exercises.
You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link (Spanish version) or see how Dani tells us what this disease is for him in this vídeo (Spanish version).
Currently, more than 2000 mutations are known in the gene that is defective in people with Cystic Fibrosis, although only about 150 mutations are described as causing the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease (1 in 40 in the Balearic Islands).
In the Balearic Islands there are 76 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.
