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Ana Amate, President of the Cystic Fibrosis Balearic Association and mother of a 4 year old boy with CF, talks about the Schooling of children with CF.
In this new informative capsule, Ana Amate and Carlos Pons, Director of the Respiralia Foundation discuss the issue of schooling for children with Cystic Fibrosis in times of pandemic.
The Respiralia Foundation returns with a new informative capsule about Cystic Fibrosis. In today’s talk, we speak with Ana Amate, President of the Cystic Fibrosis Balearic Association and mother of a 4 year old boy with Cystic Fibrosis and a 6 year old girl who does not have the disease.
How was the situation at home from confinement until the end of the summer?
They comment the question of the schooling of the children in times of pandemic, especially in those who have CF. The decision to take them to school was not easy. The news coming from the public administrations at the end of the summer was not clear, so the decision was complicated.
Should children under 6 years of age wear a mask?
Nowadays, taking a boy or a girl with Cystic Fibrosis under 6 years old to school, when the rest of the students do not wear masks, raises many doubts in the families. Is it really so detrimental for children under 6 years old to wear the mask for their learning? If so, is it worth the risk of taking the coronavirus home?
Is it good to keep children with CF under 6 years old in a bubble?
What does it mean for children under 6 not to interact with their peers? Is it good to keep them in a bubble? Ana Amate answers all these questions. Don’t miss this informative capsule if you want to know the answers…
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link or see how Dani tells us what this disease is for him in this vídeo.
Currently, more than 2,000 mutations are known to cause the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease.
In the Balearic Islands there are 73 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.
