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The Cystic Fibrosis Balearic Association receives a subsidy from Consell Insular de Menorca of 5.095,87 € for the project of Comprehensive Attention for people with Cystic Fibrosis in Menorca.
This project aims to provide tools to children and young people with Cystic Fibrosis in Menorca to become people who manage the treatment of their disease as autonomously as possible.
Improved quality of life
The fact of mastering the techniques for the treatment of their disease will allow them not to depend on the team of professionals when making important decisions in their lives, such as, for example, going to study or work outside their city, making Cystic Fibrosis not an impediment.
A comprehensive treatment
The reception of families with a recently diagnosed member; the orientation and follow-up of all people with Cystic Fibrosis and their families in all stages and circumstances of the disease; the training in the technique of Autogenous Drainage, inhaled therapy and hygiene measures; the training in exercises of re-education to the effort and psychosocial attention are the tools we use to improve the quality of life of our group.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link or see how Dani tells us what this disease is for him in this vídeo.
Currently, more than 2,000 mutations are known to cause the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease.
In the Balearic Islands there are 73 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.
#TogetheragainstCF
