In this informative capsule, we talk about the importance of effort and resilience in cystic fibrosis with Alba Pérez-Aragón, a young woman with cystic fibrosis, also known as mucoviscidosis, who has shown an incredible spirit of perseverance. The most expected call In 2021, Alba starred in an informational video with us. At that time, she […]
Kaftrio
Workshop on cystic fibrosis research projects
On Saturday, December 13, starting at 5:00 p.m., the Respiralia Foundation is organizing a workshop to explain the development of three of the six research projects it is funding. The workshop will be online via this link: https://zoom.us/j/94729127740?pwd=QmsDCyMvLVCPus23hGWjAi8ko7GxL8.1 Project on the impact of Kaftrio on the microbiota Dr. Amparo Solé, head of the research team, […]
The power of associations that change lives
In this informative capsule, we are joined by Jorge Busquets, father of a young man with cystic fibrosis who, until recently, had Mycobacterium abscesus and Staphylococcus aureus. We talk about what an association can do in cases like this. Evolving Therapeutics’ involvement His son Jorge was rapidly losing lung capacity, was weak, and was losing […]
