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Yesterday, Wednesday May 26, the Respiralia Foundation organized a wine and olive oil tasting, accompanied by an exhibition of Cuban salsa.
With the great wines from Italy, France and South Africa donated by Adam Perkal of Mundidrinks and the exquisite Majorcan Arbequina olive oil donated by Treurer, the Respiralia Foundation organized a pleasant evening with the participation of 114 attendees, all of them friends of good wine and with great solidarity. We must also acknowledge the generous contribution of an excursion on a luxury yacht donated by Malcolm Andrews from Prime Estates and a piece of decoration from Lares Decoración for auction and for the draw respectively.
Thanks to the work of the Bendinat Group, Mallorca Golf Servies and Nimbus Comunicación we have managed to raise € 2,713.00 for the treatment that the children with cystic fibrosis receive at theRespiralia Foundation.
The evening had a touch of color by the students of the Dance School Little Havana, Gastón Carvallo to the head. An exhibition of “rueda de casino” and of “dance with two” style and then free dances with different guests, made this wine and oil tasting a special one.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
The treatment for Cystic Fibrosis includes antibiotherapy, a healthy and hypercaloric nutrition and respiratory physiotherapy combined with endurance exercises.
You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link (Spanish version) or see how Dani tells us what this disease is for him in this vídeo (Spanish version).
Currently, more than 2000 mutations are known in the gene that is defective in people with Cystic Fibrosis, although only about 150 mutations are described as causing the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease (1 in 40 in the Balearic Islands).
In the Balearic Islands there are 76 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.
