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A massive demonstration has requested this weekend in Madrid to the administration, the financing of medicines Orkambi and Symkevi to save lives of people with this disease.
The Cystic Fibrosis Association of the Balearics and the Respiralia Foundation, involved in this protest, have been present with some members.
At this time people die due to lack of treatment with these medications
The associations, which include people with this disease, request an urgent solution from the Ministry of Health and Vertex Pharmaceuticals Laboratory.
This financing is a demand that is extended to the autonomous governments. Thus, says Carlos Pons, Managing Director of the Respiralia Foundation, the need has been raised for the IB-Salut representative in the Interministerial Commission to support this measure at the next meeting.
In the last year the cases of this disease have increased in the Balearic Islands. (click here to read the news)
