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Carlos Pons, Director of the Respiralia Foundation, tells us what is at the backstage of CF projects so that they can be carried out in this new informative capsule on Cystic Fibrosis.
The backstage of CF projects
Carlos Pons, director of the Respiralia Foundation, tells us how the projects of direct care to people with Cystic Fibrosis of the Respiralia Foundation are supported.
What do people expect to be done with the money a person donates to the Respiralia Foundation?
After many years of experience, we know that donors prefer that this money is allocated entirely to the child or young person with Cystic Fibrosis. Therefore, the Respiralia Foundation seeks other sources of funding to pay those expenses that are inherent to the project, such as supplies or financial costs (mortgage) that allow us to have unique facilities in which to offer excellent quality services.
On the other hand, he gives an account of how the relationship between the collaborating company and the Respiralia Foundation has changed.
New ways of engaging with financing companies
Currently, the company is invited to get to know the project first hand, to participate in it if possible and, later, if they have liked the work being done, to support the project financially.
KEphone, a new CSR formula based on “win-win”.
Carlos Pons, reminds us that there is a company (Sixt Services) that, in times of Covid, has offered invaluable help through the “win-win” business concept, whereby the Respiralia Foundation, the company Sixt Services through its brand KEphone and a third company or individual benefit in one way or another. That is to say, that the savings in telephony of a company or individual, contracting through KEphone any offer from Vodafone, Orange, MásMóvil, Symio, Amena or Llamaya, translates into a donation from Sixt Services to the Respiralia Foundation. These are new forms of collaboration that are highly valued.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link or see how Dani tells us what this disease is for him in this vídeo.
Currently, more than 2,000 mutations are known to cause the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease.
In the Balearic Islands there are 73 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.
#TogetheragainstCF
