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The improvement of services depends on good management. That is why the Cystic Fibrosis Balearic Association is committed with the quality management.
Support of the Cystic Fibrosis Spanish Federation
Thanks to a project of the Cystic Fibrosis Spanish Federation, the Cystic Fibrosis Balearic Association will opt in 2019 to a seal of “Recognition of management and Social Commitment” created by the Develop Group and certified by Bureau Veritas.
Training sessions on quality management
Several professionals and other interest groups are working hard to improve our entity. On Saturday, January 12th we were in Madrid at the second quality management workshop together with other entities. Some other courses will be attended, so the services offered by the Cystic Fibrosis Balearic Association reach the highest standards.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
The treatment for Cystic Fibrosis includes antibiotherapy, a healthy and hypercaloric nutrition and respiratory physiotherapy combined with endurance exercises.
You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link (Spanish version) or see how Dani tells us what this disease is for him in this vídeo (Spanish version).
Currently, more than 2000 mutations are known in the gene that is defective in people with Cystic Fibrosis, although only about 150 mutations are described as causing the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease (1 in 40 in the Balearic Islands).
In the Balearic Islands there are 76 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.
