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From now on, you can get the documentary film about Cystic Fibrosis “The Salted Kiss”. If you are interested, you should send the request via email to the Respiralia Foundation (fundacio@respiralia.org) and we will send it to you.
The Respiralia Foundation, in coproduction with IB3TV, and with the direction of Borja Calvo, edited this documentary film to make people aware about cystic fibrosis in a easy way. Filmed between 2006 and 2007 in different Spanish and European spots, it was shown for the first time in Palma in 2007, following other cities like Valencia, Madrid, Barcelona, Mahón, Formentera, Castellón and New York.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
The treatment for Cystic Fibrosis includes antibiotherapy, a healthy and hypercaloric nutrition and respiratory physiotherapy combined with endurance exercises.
You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link (Spanish version) or see how Dani tells us what this disease is for him in this vídeo (Spanish version).
Currently, more than 2000 mutations are known in the gene that is defective in people with Cystic Fibrosis, although only about 150 mutations are described as causing the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease (1 in 40 in the Balearic Islands).
In the Balearic Islands there are 76 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.
