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The project Education equals Health in Cystic Fibrosis continues to add collaborations with the help of € 2,000.00 from the Guillem Cifre Foundation of Colonya.
Ethical savings of Colonya Caixa d’Estalvis de Pollença
Colonya Caixa d’Estalvis de Pollença, through its ethical savings program, collaborates with different projects of entities that work with the neediest groups. The Respiralia Foundation is one of the beneficiary entities.
A project with great results
Educatation equals Health in Cystic Fibrosis is a project based on training in the treatment of Cystic Fibrosis from two points of view:
- Autogenous Drainage Technique, inhaled therapy and hygienic measures
- Exercises for endurance training
37 people at the Balearics participante in this project.
What is Cystic Fibrosis?
Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.
It mainly affects the respiratory, digestive, reproductive and sweat glands.
The treatment for Cystic Fibrosis includes antibiotherapy, a healthy and hypercaloric nutrition and respiratory physiotherapy combined with endurance exercises.
You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link (Spanish version) or see how Dani tells us what this disease is for him in this vídeo (Spanish version).
Currently, more than 2000 mutations are known in the gene that is defective in people with Cystic Fibrosis, although only about 150 mutations are described as causing the disease.
Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease (1 in 40 in the Balearic Islands).
In the Balearic Islands there are 76 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.
The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.
