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The Government endangers physical therapy sessions for children with Cystic Fibrosis, with the possible prohibition of aid from pharmaceutical companies to patient associations.
Patient associations in Spain may run out of one of their main sources of funding and be doomed to disappearance. This is what the collective fears if the opinion of the Congress Reconstruction Commission is approved and it becomes a Law. This PSOE-Podemos proposal maintains that the pharmaceutical industry will be “prohibited” from financing “directly or indirectly” its activities.
Non-profit Associations reach where the National Health System cannot. They would stop receiving between 75 and 100% of the funds that these organizations raise to care for patients, within the law.
The Spanish Confederation of People with Physical and Organic Disabilities, COCEMFE, calls on Congress not to prohibit the financing of the pharmaceutical industry from associations.
The Confederation calls on the Congress of Deputies to modify the opinion of the Commission for Social and Economic Reconstruction so that instead of prohibiting, it establishes a regulatory framework that defines the financing by the pharmaceutical industry of activities carried out by patient associations.
COCEMFE has been one of the participating entities, through CERMI, in the Reconstruction Commission, whose opinion will be sent to the House in plenary session for debate and approval on July 22 and proposes to prohibit the sponsorship of activities of the associations of patients by the pharmaceutical industry, either directly or indirectly, among other issues.
For this reason, the vice president of COCEMFE, Eva Pérez Bech, explains that “restricting the financing of patient associations at a time like the present puts at risk the sustainability of the organizations that provide an essential service to thousands of people with disabilities and diseases Chronicles“. In this sense, Bech recalls that “to COCEMFE and its Associative Movement the only interest that moves us is to respond to the needs of people with disabilities and chronic diseases, and we avoid any type of interference by complying with our ethical code and the values of the entity, among which are integrity, independence, transparency and rendering of results ”.