From the Respiralia Foundation and the Cystic Fibrosis Assotiation of the Balearics we are launching some informative capsules on topics of interest about Cystic Fibrosis.
We will talk with people with Cystic Fibrosis and their families and with professionals dedicated to its treatment.
In this first capsule Carlos Pons interviews Alba Pérez-Aragón about Trikafta, as it is called in the United States, or Kaftrio, as it is called in Europe..
Alba is a 32-year-old girl, a nephrology specialist who also has Cystic Fibrosis.
From 2017 to 2019 she had a significant drop in lung capacity that left her on the verge of a lung transplant. Her work schedules, with her on-call duties, and her desire to not want to stop doing the same things she did took a toll on her health.
In 2020, Vertex Pharmaceuticals granted him Trikafta / Kaftrio for compassionate use. Thanks to this new drug, her life has changed for the better, despite the Covid-19. Doctors have taken her off the transplant waiting list because of her improvement. After being on sick leave for a long time, she is back to work, to do exercise with some intensity and to study, with renewed spirit and more strength than ever.
You can listen and watch the full interview in this link.