Carlos Cayuela’s donation

Disponible en / Available in: Español

Carlos Cayuela, friend of the Respiralia Foundation, has helped children with Cystic Fibrosis may continue to receive their treatment As he had to do some practices of his osteopathy studies, Carlos Cayuela invited his friends to be his patients to practice the techniques he was learning. As it was a real treatment, he decided that every friend of him helped the Respiralia Foundation to finance the treatments of the children with Cystic Fibrosis with a little donation. In a piggy bank designed by his friend Sandra Donadeu, Carlos collected 545,00 € for our cause. Thanks for this iniciative.

What is Cystic Fibrosis?

Cystic Fibrosis is a genetic, serious and degenerative disease that to date has no cure.

It mainly affects the respiratory, digestive, reproductive and sweat glands.

The treatment for Cystic Fibrosis includes antibiotherapy, a healthy and hypercaloric nutrition and respiratory physiotherapy combined with endurance exercises.

You can see the infographic published by the Cystic Fibrosis Spanish Federation in this link (Spanish version) or see how Dani tells us what this disease is for him in this vídeo (Spanish version).

Currently, more than 2000 mutations are known in the gene that is defective in people with Cystic Fibrosis, although only about 150 mutations are described as causing the disease.

Statistics show that 1 in 5,000 people in Spain has Cystic Fibrosis (1 in 6,400 in the Balearic Islands) and 1 in 35 people is a carrier of a gene that causes the disease (1 in 40 in the Balearic Islands).

In the Balearic Islands there are 76 known diagnosed cases, but statistics speak of between 85 and 90 possible cases.

The awareness project of the Respiralia Foundation aims to raise awareness of this disease in order to discover those cases of people who have Cystic Fibrosis but have not yet been diagnosed.

#TogetheragainstCF