In this information capsule we talk about paternity in Cystic Fibrosis through in vitro fertilisation when the man has Cystic Fibrosis. Dani Carvajal, a young man with Cystic Fibrosis Dani Carvajal, a young man with CF, is the father of a 5-year-old girl. He tells us how his life has changed after the birth of […]
Cystic Fibrosis was the protagonist on Sunday in Palma
Cystic Fibrosis was the protagonist on Sunday in Palma. 622 people participated in the race “XIV Kilometers of solidarity against Cystic Fibrosis”. High citizen participation The race “XIV Kilometers against Cystic Fibrosis, organized by the Respiralia Group, has gathered 622 people in solidarity, including 170 people mobilized by the family of Joanet, a 6 year […]
Transforming the Cystic Fibrosis clinical care landscapes
Dr. Paul Robinson, Queensland Children’s Hospital, Australia, spoke about transforming the Cystic Fibrosis clinical care landscape at the ERS Congress 2023 in Milan. Cystic fibrosis in the era of highly effective cystic fibrosis transmembrane conductance regulator modulator therapy Dr Robinson gave an introduction on Cystic Fibrosis, focusing on CF and modulators for the whole audience. […]